Thoughts on first MMJ dose

Surprise!! 

Look what I had delivered to me on Friday, a whole three days earlier than Canada Post informed me of! 

 

So first thing: Ugh.. I think the Red killed my GI system :/ 

I woke up Saturday morning and pretty much projectile vomitted everything I consumed Friday; from my first consumed meal until bedtime. And then my tummy was all tender, owie, and stinging & burning. It was pretty much crackers, gingerale, gatorade and instant miso soup all day yesterday.

Either: 

A.) I had too much too soon (0.5ml Blue @2:30pm, 0.5ml Red @9:00pm)

B.) I didn’t take into consideration the crazy super high THC potency of the Red (THC 26.3mg/ml + CBD <0.7mg/ml) and should have perhaps taken only 0.25ml to account for it, being a completely new MMJ patient.

C) I got bad food poisoning.

The side effects of the Red were kind of fascinating compared to the Blue for completely different reasons (obviously).

My hearing got completely amped up — hard to describe, but it was like I was hearing three different tones or frequencies or… “Something” in every sound. OMG! The sound of TheHubbs™ snoring was so weird and cool all at the same time, and listening to my oxygen concentrator was so wild! 

I took the Red late at night about 9:00 pm with the intention/hope that it would help my perpetual insomnia + late night pain issues (and be solidly kicked in by bedtime), right before we started watching Star Wars (heh). By the end of the movie I was pretty much on my way to being completely stoned out of my mind. My body had a competing “walking fast forward through molasses feeling” that  I mentioned to BabyBro ^_^ 

I kind of got the giggles for awhile and I so wanted to tell TheHubbs all sorts of stuff (stupid stuff! I knew it was stupid in my head but wanted to tell him anyways to share in the stupid!!) but he was too tired to have any actual conversation and likely would have been supremely cranky & annoyed at me if I started rambling at him ;)

Right before bed I was absolutely starving and wanted a snack, but I was honestly scared that I would fall down the stairs and injure or break something because my sense of balance & self had just left me. I could stand and walk to the bathroom, albeit slowly, but I was pretty sure falling would be imminent if I even tried the stairs. 

Having said that, I did have about three crackers, and some water, and I think that the cannabis oil might have altogether shut down my digestive system and gave me major owie reflux and aspiration issues into my lungs. 

Note: NOT a great side effect for my already compromised GI system from SALLY, if it’s an actual side effect for me — see above re: barfing. Seriously. I take all those stomach drugs to get my intestines to push food straight through & for my stomach to empty contents faster, but the oil pretty much stopped it all.

Sleep was definitely heavy but I could feel sounds and my body doing weird things.

Then there was also the weird heart, chest issues… 

Which in hindsight may have actually been a really bad side effect to just be “enjoy watching from afar”. I think my heart was having difficulties pumping… Which, given the left side of my heart is already enlarged from the PAH, having my heart feel like it’s slowing down & struggling, may have been bad.

So, for now, I think the Red is going to be kept on the back burner; I definitely won’t take it again until the weekend at the earliest, so TheHubbs™ can be with me and keep an eye on things, and I am going to reduce my dose to the lowest recommended dose possible (0.25ml) and try to keep some accurate notes on how it affects me.

All that, and I am not going to mix oils. Maybe it’d be less conflicting if I were vaping to try different strains throughout the day, but oils are definitely not feeling like they’re going to benefit me if it causes that much in terms of side effects & discomfort. 

The Blue Oil was interesting because I could feel it come on in around my eyes & temples within a pretty short amount of time; say 15-30 minutes? I was chatting online & talking to The Boys in LA so I don’t actually know the exact time span. 

By comparison it also made me… Comfortable? I was totally holding off taking the oil and I was starting to have pain, so until TheHubbs™ got home around 1:30/2:00pm (new bed delivery!) I was really trying to distract myself from taking my normal pain meds because I wanted to test how well it worked for my chronic pain. It was great, needless to say. I was happy? At least, pretty pleased that it didnt take too long for pain relief to kick in. 

As a side note: I don’t like the way the oil dispenses. I have to use a super tiny (but accurate) syringe. Sticking it into the bottle makes the syring all oily and I feel like it wastes some of the oil by dripping all over. I wish there was a better way to administer it — I ended up squirting the oils onto a spoon and the consuming it that way, but the first time I accidentally squirted a drop onto my pants; those’ll be forever stained (TheHubbs™ cheekily asked me if my pants were gonna be forever stoned now :P)

Anyhow, I guess the Blue also makes me feel Awakened, but happily snoozy? 

I took a great short nap for maybe 20-30 minutes before we left for Mom & Dad’s and I swear: I have never had a nap feel that awesome. 

I woke up feeling pretty damn great ^_^ I was still kind of sleepy headed, but I was happy to be awake & mellowed and chilled. I never feel that way after a regular nap. BTW: Music sounded really awesome and oh man, I totally get grooving music from the 70s LOL! 

It also made Family Dinner feel way more… Tolerable. I didn’t have all the anxiety I’ve been getting from the last few weeks and I think I may have been ridiculously happy, cheery and perky. 

Also: I may have confused the shit out of Baby Skywalker explaining to her the merits and awesomeness of having real puppets/puppeteers performing alongside real actors (again) in Star Wars ^_^ She looked really confused as to why I would think puppets were so awesome when it comes to trying to get an audience to feel like another world & galaxy might actually exist, “A long time ago, in a galxy far, far, away…” vs. Watching CG creatures in a world that’s way too slick & shiny like a video game that you already know isn’t real and doesn’t exist.

Anyhow, I think on the whole, I feel pretty safe to attempt consuming  the Blue oil when I’m alone and by myself. For now, I am going to try using it more often as my first choice for pain relief. I have my first monthly appointment with FamDoc on Thursday since beng prescribed at NHS and I want to be able to tell him with absolute certainty which of the strains/oils have been of actual benefit to me and then we can hopefully start decreasing/eliminating my hardcore opioid/narcotics pain meds. That is the biggest goal we’ve got our sights set on if the medical marijuanna works for me.

Plus: I am seriously starting to contemplate the idea of vaporizing… And I think that’s my big conversation I need to have with him this week because if I could do that, then suddenly I have access to a much larger variety of strains to try and determine what works best for my pain. I really hate that we don’t have access to commercially made Medibles in Canada. It’s such a messy undertaking to make my own cannabutters/oils which can be used to make my own medicated edibles. >_<;;

Hmmm… So yeah! Both oils were great for my pain relief, so that’s at least been determined. Now’s just the experimentation to find which oil works best. Only problem is having extremely limited options in terms of actual available oils in stock. Mettrum has 2-3 so far, mostly reds. The Blue I totally got by fluke because I was humming and hawing over which Red to buy. And the Yellow I am still waiting for it to be restocked.

Tilray offers Oils and DROPS, but their first batch was a limited quantity run back in February and none of it has been back in stock since. This totally blows because I am thinking maybe I should consider changing LPs to a provider that actually has consistent stock onhand, like maybe: Broken Coast or Tweed.

*sigh* 

Moving forward with Medical Cannabis

Well this was an unexpected surprise ^_^

  
I didn’t think I was receiving a Tilray welcome package until I actually purchased something! 
As a side note: I wonder if it’s even a possibility that I could try using a vaporizer for medical cannabis/medical marijuana with all my combined auto-immune conditions from SALLY? I know that Health Canada “approves” of the Volcano Vaporizer for MMJ, but does anyone out there in the Intarwebz know if it’s (medically?) safe to vape with crappy lungs? 

I have absolutely no experience with any of this, so I’ve been having long, drawn-out, yet fascinating & informative, conversations with Whitey about all things medical marihuana (how Health Canada chooses to spell marijuana). His recommendation has always been to find some kind of commercially made Medibles (marijuana-infused edibles) like Kiva Confections. This is absolutely how I would prefer to go about slowly learning to medicate. Frustratingly, the only forms of medical marijuana available to us in Canada from LPs are the traditional buds and only most recently: oils.

I could certainly try to make my own tasty treats & concoctions, but trying to figure out the dosing calculations on homemade stuff just sounds like a terrible headache and potential nightmare. Not to mention the fact that TheHubbs™ and I both find the pervasive smell of recreationally used cannabis absolutely revolting (We’re looking at you, Vancouver!) so having that lingering smell in the house while I’m trying to make cannabutter or oils has pretty much been completely taken off the table. 

What I’d REALLY love is a Magical Butter Maker to help limit the smell of cannabis while making the butter/oil, but OMG it’s so expensive to do the US$/CDN$ conversion. *sniffle*

Having said that, if anyone out there would like to send me their products in exchange for having a patient-centred review of your product(s); I’m open-minded & might be keen. There doesn’t seem to be many companies out there interested in understanding what patients with chronic-illnesses or autoimmune diseases think or have to say about their products, from a social media aspect/perspective.

I guess the biggest reason why I keep coming back to the idea to try using a vaporizer (and I am seriously considering it but still waffling on whether or not to actually do so), is because my digestive system is kind of broken and slow as f*ck on a normal day; goodness only knows how long it would take to have the cannabis oils kick in once ingested. Chronic pain is the biggest issue I’m dealing with on a daily basis and I sure as hell don’t wannna be stuck taking an oil which could take up to 4 hours to kick in before the effects are felt for pain relief. Over time, the plan that FamDoc and I would really like to have happen is to entirely eliminate all the opioid pain meds I am currently taking, and hopefully have my GI system functioning a little more “normally”.

Using a Vaporizer (vaping) is supposedly approved by Health Canada, and kind of acceptable for lung patients, but I dunno how keen HawtDoc would be about it — I’d like to think (and am certainly hoping) that he’s open-minded and amenable to the idea, Rheumy too by the way. I’ve been reading a lot of articles recently, pointing to the benefits of MMJ for Scleroderma, and right now: FamDoc & I are hoping that Medical Marijuana will be a beneficial choice not just for the treatment of my chronic pain, but for all my associated conditions, all around. 

 

New Treatment Update.

Sooo… I met with the new Doc who will be overseeing my new treatment and I guess she will kimd of be working in tandem with FamDoc for my chronic pain care. She was super awesome & friendly.

To put it mildly, she was rather surprised at the monster combination of Sally & Co. and I have a follow-up in 2 months. She is confident that I will definitely get benefit from using Medical Cannabis and seems to be pretty hopeful that we’ll be able to slowly wean me off my current pain meds over time; it’ll be a ridiculously slow go, but she thinks it can be done. In fact, she said if I wanted to, I could try to start reducing it by a tiny little bit as I am working out the kinks of what works best for me with the MMJ (medical marijuana).

Since I don’t have the option to smoke, she’s hoping I will experiment with all the different options currently available: oils, tinctures, commercially made medibles, and if I am feeling brave enough to make my own cannabutter/oil, I can try different strains to see what works best for my pain over the next couple months and have some positive things to report back at my follow up.

Interestingly, while I was waiting for this appointment, an article from Scleroderma News popped up in one of my social media feeds: New Cannabinoid-based Drug Slows Fibrosis, Blocks Inflammation in Early Scleroderma Study.

Seeing as this is almost 8 hours later, The Dude was supposed to be doing all the provider signup for me and said I should be able to order stuff by the time I got home, except there was a voicemail message saying that he forgot to ask me for my mailing address to complete the application process. *Sigh* I really wish I could have started looking at stuff and put in an order tonight. I doubt the application kerfuffle will be rectified before the end of the weekend :P

Curiously, I don’t know if what I’ve been prescribed is considered “a lot” in the scheme of things, as I don’t even know the dose. The Dude had all my prescription information when he walked me down to the pharmacy to tell me about how I would order everything from my chosen provider. He did seem a bit surprised to read the scrip.

Once I get my signup information email, he recommended that I talk to the provider regarding compassionate pricing which would make things a little easier to manage, financially. Other than that, I am toying with the idea of getting a Magical Butter Machine so that if I decide to make that leap of making my own ‘medibles’, the MB2e may be a less stinky way of going about it. TheHubbs dispises the smell and to be honest, so do I.

So: Let the fun begin.